Itâ€™s the most wonderful time of the year. Last week our oldest son Jackson was hospitalized for long term EEG monitoring of his brain and three days later the worst was ruled out. Itâ€™s the most wonderful time of the year.
Today was our younger son Jordanâ€™s turn. Jordan has severe food allergies. Severe is a strong word, but appropriate. Jordan is allergic to milk, soy, soy lethicin and a lot of other crap that goes into creating our food. Read the labels on foods and youâ€™ll see what a challenge it is to feed Jordan, but we (really his mother) have and well. His mother, Jennae, even makes him special desserts, so the guy never feels left out at parties or celebrations.
Lately he has been complaining that his stomach hurts after eating, despite taking a host of medicine to help control his severe acid reflux. Back to the specialist, then back to the hospital for an endoscopy. Jordanâ€™s third of his life. How many parents have pictures of the inside of their kidâ€™s esophagus and stomach? We have a photo albums worth. As expected Jordanâ€™s is abnormal.
The new photos show that Jordanâ€™s esophagus tissue is thickening because of the reflux, there are also abscesses, and where most peopleâ€™s esophagus is smooth, his has little bumps. The doctor took seven biopsies and doesnâ€™t want to say much about what she saw until the results of the biopsies are back. Some presents you can not wait to tear into, others you hesitate. It is the most wonderful time of the year, right?
It is the most wonderful time of the year! Itâ€™s busy and rushed, a great distraction. I study, or attempt to study, Buddhist philosophy and find the teachings to be of great help to keep â€śpresent,â€ť not easy to do when the â€śwhat ifsâ€ť and the â€śwhat the fucksâ€ť sneak in. However, when my attempt to stay â€śpresentâ€ť fails, I tear into my other favorite presents, Guinness and Jameson. (Pardon me while I take a CHUG!) Then I come back to the moment.
In the moment I remember, weâ€™re all here and these are some good times. Jordan was cracking jokes with the anesthesiologist, even blew the docâ€™s weak joke which was, â€śWhat do you call a pig that knows karate?â€ť Jordan blurted out â€śA pork chop!â€ť Plus, there is snow to ski, sled and pummel each other. My buddy Tommy always makes me laugh, especially when he awkwardly calls to see how weâ€™re doing. Jennae, who is 7 months pregnant , makes the holidays great no matter what is going on around us and she has the perfect egg-nog to brandy ratio! Yeah, it IS the most wonderful time of the year!
I follow your family stories every morning. Thanks for sharing so candidly. My thoughts are with you and the boys AND Jennae. Hang in there. It always gets better.
Thanks for the kind thoughts. I hope you have a wonderful holiday season.
Hey Bill, I love the show, I listen every morning. You guys are great. I just wanted to say that you and your family have been in my thoughts. You sure have a lot going on with the kids. It is always good to try and take a stressful situation and make something positive out of it, though not always easy is it. My seven year old son was born with a serious heart condition and has had open heart surgery three times since birth. So I can relate to the stresses of our kids being in the hospital. I so get what you mean when you are trying to be positive but the what ifs, and the WTF's creep in. At least we live in an area where we have the best doctors around.
I hope you and your family have a Merry Christmas and a blessed new year especially with the new baby on its way.
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